The Story |
||
|
How it all Started... Stephen was a healthy six year old boy who loved to play sports, especially baseball and hockey. Doing everything a six year old could be expected to do. One day (by chance or divine intervention) it was detected that his back (spine) was deviating slightly to one side. His pediatrician was also concerned and referred him to an pediatric orthopedist. Although rare for boys his age, the original diagnosis was the onset of pediatric scoliosis. As a result of the condition's rapid progression, other specialists were consulted and more tests were performed. Examinations determined that he had lost some abdominal sensation and an MRI was ordered. This proved to show the underlying cause of his early scoliosis, he was then diagnosed with Arnold Chiari Malformation at the base of his brain. This is a condition that affects the normal circulation of spinal fluid produced in the brain and distributed throughout in the spinal cord. Left untreated, it causes permanent damage to the bodies nervous system and eventual paralysis. In his case, the only solution was immediate brain surgery to improve fluid circulation and prevent further irreparable nerve damage. The first surgery, at a prestigious NYC hospital, did not improve his condition as expected. After months of recovering, MRI's did not show signs of improvement. A second surgery was recommended. After searching for any possible alternatives to further surgery, it was the only way. A second surgery was preformed at UMDNJ. This would be his second major operation in 5 months and his strength was being tested. His body was ailing but his spirit was being strengthened. This surgery proved to be a success! Stephen recovered in the coming months and was able to return to his normal routines and school. Although not guaranteed to improve from the surgery, his scoliosis also started improving and eventually corrected.
Over
these prolonged hospitalizations, Stephen noticed that other children on
his floor did not receive as many gifts, toys and attention as he
had. He was very fortunate to have so many caring family and friends
and he realized that not all the children were as fortunate. He know
he wanted to make a difference for them.
After
returning to school, one day in the playground at lunchtime, Stephen and a
classmate came upon a shinny penny on the ground. They both claimed
it for themselves but eventually Stephen convinced his classmate to give
it to those how need it most. From that moment, his mission took
shape. Bringing that penny home would prove to be the start of his
efforts to spread hope and comfort to the needy in his community. His mission continues to grow and help the needy children in his community... |
|